the emmy bear

not much time for writing. our little emmy continues to progress. however, it is quite apparent as she gets older (she's 16 weeks as of this past saturday!) and begins missing milestones that she has a brain injury. she does not smile yet, except in her sleep. it is so cute when it flickers across her face and i can't wait for the day when she flashes a real one. she also has very low muscle tone. this means that while most babies are kicking their legs and reaching and grasping, she mostly just lays there. her neck and trunk are also very weak and we are working hard on tummy time (which she absolutely hates!) to get her little neck strong enough to hold her head. she's not doing much visually either, although we have seen some progress in her eyes and feel like she's starting to see more. she has an appointment with an opthamologist later this month. she also will see an ENT later this month about her ears, which we were told have fluid, which could be affecting her hearing. only four months in and she's already seen four neurologists, two urologists, two pediatricians, many neonatologists, and a pediatric surgeon. she has occupational therapy on tuesdays, developmental therapy on wednesdays and feeding therapy on thursdays. she will soon add physical therapy and vision therapy to her weekly appointments. it's not what we signed up for, but it's what we do for our little angel. and once again, here is the sweet face that keeps us going.