Monday, February 21, 2011

"cautiously optimistic"

this was the description Emerson's neurologist used today in describing her prognosis. although we didn't receive many definitive answers, our meeting with her team of doctors and caregivers offered lots of hope and renewed positivity. the bottom line is what we've been hearing all along: we just have to wait and see. wait and see how she progresses in the short and the long term. but there is definitely hope that her little brain, which sustained injury from the lack of oxygen at birth, has the ability to recover over time. if any brain has this capability, it is the resilient brain of a baby. so this is what we pray for.

today also showed us some more baby steps toward her independence. her oxygen tubes which have been intrusively taped across her face and into her nose were removed today. she is maintaining good oxygen levels entirely on her own. it's so nice to get rid of those things and see her little face shining through. in fact, she only has one intrusive tube left, the feeding tube that still runs from her nose to her stomach. this will be the big factor in getting our Emmy home. we are still likely weeks from getting to take her home with us which probably won't happen until she is able to eat on her own. but we know she is best served in the NICU where she can continue to receive the best possible care.

here's a shot of her this afternoon (sans the oxygen tubes at last) sleeping soundly.

thank you to all who have been following our story, sending such positivity and praying for us. we truly believe you are making a difference and appreciate each and every one of you.

4 comments:

The Johnson 5 said...

Your sister Kris is a good friend of mine and I have been following your story through her blog and your own. I have been praying for your family and your darling baby girl. She is just precious. I am so thankful to hear of her promising prognosis. I will continue to pray for continued improvement with her health and strength for you and your husband. God Bless you!

Jenny Johnson

Lyndsey said...

Hello. I follow your sister's blog and I've been reading about your precious little girl. My son was born early and we went through a lot of the same things you are going through. We spent 5 weeks in the NICU while he learned how to breath and eat, just like your little one. I just wanted to let you know that we are thinking of you, and we are hoping for the best. Hang in there, I know this is one of the hardest times of your life, but it will get better.

Marie @ Chocolate-Covered Chaos said...

She's so beautiful! I'll continue to pray for her and the rest of you. I keep popping over when Kristin gives an update. So glad to hear that she is doing better. Hang on to HOPE. Hugs from PA!

Anonymous said...

Praising God for the good news Dawn!! We will continue to pray for His Miraculous Hand to fall upon her and heal her. She is SO precious- I just want to hold her. I know how you must be feeling away from her. Thank you for keeping us updated, so we know how to pray specifically. Much, much love to you all! Cara